You have what???….My journey with UC

Humira – Just Keep Swimming 🐟

Humira for me is still up for debate if its working. 

🔘 Did I see immediate results? – No

🔘 6 weeks mark – Slight improvement . I stopped all other meds (6mp, allopurinol, & entocort) – I added prednisone

🔘 8 weeks mark – I texted my Dr really good results being seen. 

Fingers crossed this combo kicks it.  Even if this is a brief period of Prednisone high, I’ll take the relief and the journey to remission continues.  Dory sums it up well – Just Keep Swimming! 

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Check Please

Took Humira Pen on plane ☑️

Survived a week of work cocktail hours ☑️

Wore a swimsuit w/coworkers ☑️

Tankini covers injection bruise ☑️

Its not always easy to travel when your in a flare. After 14 years of this disease, my confidense to handle the tougher days is so much better. I am beyond thankful.  💛

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Spring Fever

Its too darn nice out to let any IBD woes get me down today

Happy Spring to all : )

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Nesting….Darn U Humira

I found myself nesting this week prior to my first loding dose of humira… like I’m going to pick up a germ tomorrow. Slightly overkill. 

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Lucky Loo

How does one with UC just notice on the morning of her colonoscopy prep right before work that there is NO Toiletpaper in the house!! Lol… Lucky for me… a doozie was avoided and hit the store asap. 

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Holy Moly Humira

Its a flow chart disaster waiting to happen.

 I haven’t even started it yet and I think I’ve talked to 10 people between the doctor office nurses, insurance companies, regular pharmacy, specialty pharmacy, Abvie ambassadors and their own benefit folks…lol… it better work!

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The Boss

Nothing like a little Bruce Springsteen to start a long road trip  for work this week. : )

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Just A Note

Just that…A few years ago I started writing small notes on my phone.  I write them on low days when I need an extra push to get me through the day.  Its easy to be frustrated & disappointed when it feels like you have lost control over this disease.  Writing helps….even if is just a note.  

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A gooey PB&J is good for the soul… i dont care how old you are 😊

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Constant signs…

And CONSTIpation is an early sign of a flare for me… its like a gremlin inside making gnarley noises. Nothing like a quiet meeting and the gremlin says hi.   It’s a really annoying bloating gas pain thats difficult to relieve.  Its a very slow process of increased symptoms. The slight increase of mucas shows up etc and I digress. I could be just so in tune now after 10 plus years but you would think I could just nip this in the butt. (no pun intended)  

But todays internet search was “UC Constipation”. I found an article specifically relating  constipation and how it can exasperate colitis especially those with left sided.  It was like it was speaking directly too me.  I’ll try any new approach to wave off a full flare.  Let the food and water intake diary begin…. again : )

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