You have what???….My journey with UC

Nesting….Darn U Humira

I found myself nesting this week prior to my first loding dose of humira… like I’m going to pick up a germ tomorrow. Slightly overkill. 

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Lucky Loo

How does one with UC just notice on the morning of her colonoscopy prep right before work that there is NO Toiletpaper in the house!! Lol… Lucky for me… a doozie was avoided and hit the store asap. 

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Holy Moly Humira

Its a flow chart disaster waiting to happen.

 I haven’t even started it yet and I think I’ve talked to 10 people between the doctor office nurses, insurance companies, regular pharmacy, specialty pharmacy, Abvie ambassadors and their own benefit folks…lol… it better work!

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The Boss

Nothing like a little Bruce Springsteen to start a long road trip  for work this week. : )

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Just A Note

Just that…A few years ago I started writing small notes on my phone.  I write them on low days when I need an extra push to get me through the day.  Its easy to be frustrated & disappointed when it feels like you have lost control over this disease.  Writing helps….even if is just a note.  

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A gooey PB&J is good for the soul… i dont care how old you are 😊

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Constant signs…

And CONSTIpation is an early sign of a flare for me… its like a gremlin inside making gnarley noises. Nothing like a quiet meeting and the gremlin says hi.   It’s a really annoying bloating gas pain thats difficult to relieve.  Its a very slow process of increased symptoms. The slight increase of mucas shows up etc and I digress. I could be just so in tune now after 10 plus years but you would think I could just nip this in the butt. (no pun intended)  

But todays internet search was “UC Constipation”. I found an article specifically relating  constipation and how it can exasperate colitis especially those with left sided.  It was like it was speaking directly too me.  I’ll try any new approach to wave off a full flare.  Let the food and water intake diary begin…. again : )

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          Flares are not old friends you want you keep in touch with. I don’t want to stay up late with you nor do I want to hear your morning chatter.  By now I can recognize stomach signals of whats to possibly come. Can I block you Mr Flare like on FB? Lets not be besties….

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          My 1st international trip with UC 🙂

          Turns out you can live out of the gift shop when the hotel loses your luggage. I put a weeks worth of essential UC meds and items in my carryon purse. Thank God!!

          I only drank bottled water and stayed with peeled fruit and cooked vegtables. Yep success again, traveling with UC is completely ok… my nerves will get me more often then not.  

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          Having a fat day….blahh

          Girls know… Having a fat day is just blahhh. Since being on Allopurinol & 6mp, I’ve gained 10 lbs. Im feeling extra cushy.  The doc probaly thinks this is great. I on the other hand am annoyed that every time I wash my pants, will they secretly shrink on me?!  Lol.  Then I walk into the hospital to get my blood drawn and i’m surrounded by walkers, wheelchairs, disabled and real sickness…… Anddd reality check hits. Thank You I needed it today 🙂

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