ivegotflare

You have what???….My journey with UC

Not Random at All…

Part of coping with IBD is having a sense of control with the what ifs…. I cary a travel pouch full of items for my what ifs. I recently left mine at the hotel and had to build a new one.

Tums, Imodium, bandaids, lady items, prescriptions, Pep-to, sinus stuff, flashlight, bathroom spray, Tylenol….

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Comfortably Happy

I used think eggs bothered me… too much sulfur

I used to think maybe avocados bothered me too.. too rich in fiber

I used to think white bread was secretly rotting my insides.

This long journey has taught me not to fear trying anything that might make this disease more comfortable.

And I’m comfortably happy eating all these foods again & more. I have to say Humira has been a game changer.

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Old Fashion

Call me old fashion… lol but I find a whiskey old fashion a refreshing alternative when traveling for work.

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U Did It!!

I have to say this made me smile tonight…new sharps container in the mail has this flippy message thing on the lid I had not seen until just now. The jab hurt more than normal… only Humira folks understand and for all the obnoxious material that AbbVie sends… I’ll keep this one : )

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Not So Cool…

My poor mans travel pack for my Humira Pen was flagged by TSA. Note to self… the $1.00 ice pack purchased doesn’t cut it. They let me through but explained weak ice packs if thawing is not a good idea. It could be portrayed as something else.

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New Year – New Strong

Something is different this year. Even the geranium is blossoming in January!

I am learning a new strong. Learning to recognize what and how healthy feels good again. Its not always that easy but I am excited!! I feel for nano seconds of the day I forget I have IBD… crazy! : )

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When a good day feels like this : )


#ucandomexico

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When the car in front of you drives too slow…

…and all you want to do is push them out of the way to race home & take care of business! 

4 months on Humira, 2 months with really good results. I’m trying to bring back a normal social life but I think my guts are saying not so fast!  

Traveling lots this month for work, lets see how this goes.  

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Humira – Just Keep Swimming 🐟

Humira for me is still up for debate if its working. 

🔘 Did I see immediate results? – No

🔘 6 weeks mark – Slight improvement . I stopped all other meds (6mp, allopurinol, & entocort) – I added prednisone

🔘 8 weeks mark – I texted my Dr really good results being seen. 

Fingers crossed this combo kicks it.  Even if this is a brief period of Prednisone high, I’ll take the relief and the journey to remission continues.  Dory sums it up well – Just Keep Swimming! 

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Check Please

Took Humira Pen on plane ☑️

Survived a week of work cocktail hours ☑️

Wore a swimsuit w/coworkers ☑️

Tankini covers injection bruise ☑️

Its not always easy to travel when your in a flare. After 14 years of this disease, my confidense to handle the tougher days is so much better. I am beyond thankful.  💛

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